Stiff-person syndrome

2022 - 12 - 8

Post cover — Image courtesy of "Rolling Stone"

Celine Dion Reveals Rare Stiff-Person Syndrome Diagnosis ... (Rolling Stone)

Celine Dion has postponed her spring 2023 tour as she revealed she's been diagnosed with a rare neurological condition called stiff-person syndrome.

Céline Dion was diagnosed with stiff-person syndrome. Here's how ... (NPR)

The singer repeatedly postponed performances in the past year because of severe muscle spasms. In a tearful Instagram post, she revealed she has been ...

Celine Dion cancels shows because of stiff person syndrome (WOKV)

"Unfortunately, the spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing ...

Celine Dion reveals she has rare neurological disorder 'stiff-person ... (Redlands Daily Facts)

“Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing ...

“This means a lot to me,” Dion concluded her message tearfully. “This is my focus.” “But I have to admit it’s been a struggle.” “Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to.” “Spasms can generate enough force to fracture bone.” “I miss seeing all of you, being on the stage, performing for you.

Stiff-person syndrome: What to know about Celine Dion's rare ... (NBC News)

Celine Dion's diagnosis with stiff-person syndrome has called attention to the rare disorder, which causes muscle spams and rigidity in the torso and limbs.

What is stiff person syndrome? Diagnosis, symptoms and treatment (CNN)

Stiff person syndrome is a rare neurological condition that can take years to diagnose and tailor treatment.

Celine Dion's Stiff-Person Syndrome Is 'a Really Difficult and ... (Rolling Stone)

Dr. Scott Newsom, director of the Stiff-Person Syndrome Center at Johns Hopkins, explains the rare condition keeping Celine Dion off the stage.

Just as there’s no definitely-known cause for SPS, there’s also no definitive cure — though Newsome hopes that by identifying “the main start of the disease within the immune system, we can then develop more targeted treatments.” Still, there are ways to treat SPS and alleviate symptoms, with Newsome suggesting a multi-faceted approach is ideal. Even still, Newsome calls it a “non-biased condition,” saying he’s seen it pop up in young children, as well as people in their 70s and 80s. Blood tests can be done, and there is an antibody (GAD65) that frequently shows up in people with SPS; but even that’s only a tell if GAD65 antibody levels are extremely high and appear in the right clinical context. MRIs, CAT scans, and lumbar punctures can be useful in diagnosing SPS too, as well as electromyography (EMG) studies to examine how the muscles are behaving. People can live with this disease.” We can see that on an EMG.” [her Las Vegas residency](https://www.rollingstone.com/music/music-news/resorts-world-vegas-residency-celine-dion-katy-perry-1167437/) last fall, she cited “severe and persistent muscle spasms.” The same issue forced her to cancel her North American tour in Jan. It’s a really difficult and disabling disease.” (Dion did not say whether she was experiencing such triggered spasms, though as a musician, she is frequently surrounded by loud noises.) The classic symptoms described then — and which remain prevalent today — are muscular-skeletal, spanning from spasms to a fixed spine curvature deformity called hyperlordosis. There’s even partial SPS, where symptoms might be experienced in just a single limb. She pushed her 2022 tour to 2023, and then on Thursday [announced that those European dates](https://www.rollingstone.com/music/music-news/celine-dion-stiff-person-syndrome-diagnosis-postpones-spring-2023-tour-1234643733/) would have to be postponed too due to an exceptionally rare neurological condition called stiff-person syndrome. “And they can be continuous for minutes to hours.

What is stiff-person syndrome? The disease Celine Dion has been ... (9News)

Stiff person syndrome is a rare neurological condition that can take years to diagnose and tailor treatment.

There is no known cure for stiff person syndrome, but medications can ease the symptoms. "But I have to admit it's been a struggle." Scott Newsome, director of the Stiff Person Syndrome Centre, said in a video on the organisation's website. On average, it takes about seven years for someone to receive a diagnosis of stiff person syndrome, Newsome says. The first case of stiff person syndrome was reported in the 1950s, according to Newsome, and the disease was historically referred to as "stiff man syndrome." Stiff person syndrome is characterised by muscle rigidity and spasms, heightened sensitivity to stimuli such as sound and lights, and emotional distress that can cause muscle spasms, according to the National Institute of Neurological Disorders and Stroke.

What is stiff person syndrome, the disease forcing Celine Dion to ... (ABC News)

The rare neurological disease can cause muscle rigidity and spasms, sometimes leading to falls, impacting patients' ability to walk and leaving some people ...

"Her medical team continues to evaluate and treat the condition." "I was really hoping that I'd be good to go by now, but I suppose I just have to be more patient and follow the regimen that my doctors are prescribing," she said in a statement. In January, she cancelled the remaining shows in the North American leg of her tour, with a statement saying she was still recovering from a "recent health issue". Her medical team continues to evaluate and treat her," the statement said. "People with SPS may be afraid to leave the house because street noises, such as the sound of a car horn, can trigger spasms and falls," the institute says. "Muscle spasms can be so violent they can dislocate joints and even break bones," the Stiff Person Syndrome Research Foundation says.

What Is Stiff-Person Syndrome, The Condition Celine Dion Has? (Harper's BAZAAR)

Following Celine Dion's diagnosis of stiff-person syndrome, BAZAAR explains the rare and debilitating neurological disease.

He called the condition “extremely uncomfortable” and “very painful” — and can lead to difficulties opening one’s eyes, talking or singing (as Dion noted) and even swallowing. Experts say when well-controlled, people with SPS can live “relatively normal” lives, however their quality of life will never go back to pre-diagnosis days. As stiff-person syndrome is rare, there’s been insufficient research and major clinical trials for the disease — thereby making it difficult to determine whether it affects one’s life expectancy. the shoulders and the hips. [Titanic](https://harpersbazaar.com.au/leonardo-dicaprio-almost-didnt-play-jack-titanic/) — was due to tour in Germany, Switzerland, Poland, Hungary, Croatia, Austria and the UK from February 2023. While it’s not conclusive — SPS is sadly under-researched — Dr Croll believed it’s because of the disease’s “autoimmune component.” “Unfortunately, these spasms affect every aspect of my daily life,” the singer said. Even rarer, the disease can appear in children and the elderly. A person’s “whole body can seize up when startled or in other situations,” putting them at risk for falls and injuries, he explained. Leah Croll told Good Morning America that women are “two to three times” more likely to have stiff-person syndrome than men. “I always give 100 per cent when I do my shows, my condition is not allowing me to give you that right now,” she said. When the nervous system becomes overly excited, it can send too many signals to the muscles that causes them to stiffen or spasm.

Stiff-person syndrome

Explore the last week