Robin Williams

(CNN) After Robin Williams died by suicide in August 2014, his widow, Susan Schneider Williams, would soon learn about a disease she had never heard of, ...

"I kind of need to go underground for a while and relocate my inspiration and my true passion, which is art and painting," Schneider Williams said. "To have diagnostics -- that can confirm in life that someone has Lewy body disease -- goes a long way both toward confirming the diagnosis and advancing research," Galvin said. Hallucinations are "a key hallmark of LBD that can really help in identifying the disease," Schneider Williams said, but also a tough symptom many LBD patients don't want to discuss. "Our house was like 'Night at the Museum' at night," Schneider Williams said. He had about 40% loss of dopamine neurons," she wrote in her 2016 article "The terrorist inside my husband's brain So that other patients and caregivers can experience the same truth, understanding and healing, Schneider Williams has been in a "rabbit hole of discovery" and advocacy for eight years now. "Your brain is concocting a story of what you think reality is," Schneider Williams said. "And the people around you are unable to rationalize with you and bring you back into what is actually real. So that area of the brain is really our ability to regulate our emotions, particularly fear and anxiety. "I had no idea the journey I was about to begin on. "None of the doctors knew that there was this ghost disease underlying all of this," Schneider Williams told CNN in an interview. "When that was revealed, that was like essentially finding out the name of my husband's killer."